Assessing the Efficacy of a Multidisciplinary Care Model in Enhancing the Quality of Life and Functional Outcomes of Neuropathic Children

This study evaluated the efficacy of a multidisciplinary care model in enhancing the quality of life and functional outcomes for neuropathic children with gastroenterological conditions and nutritional problems. The model comprised a team of pediatric surgeon, pediatric neurologist, and clinical dietitian providing comprehensive care at a monthly clinic established in 2020. Anonymous questionnaires assessing the general quality of life and the specific impact of enteral feeding were administered to caregivers of 29 pediatric patients receiving multidisciplinary care. Results showed most caregivers reported moderate to large improvements in their child's health-related quality of life (HRQOL) since starting multidisciplinary care, including reduced pain and discomfort, improved emotional state and mood, and enhanced family physical and mental well-being. The enteral feeding questionnaire indicated acceptable to excellent quality of life scores, improved physical functioning like easier feeding, weight gain, reduced discomfort, and respiratory symptom relief. Psychological and social benefits included maintained daily activities, mealtimes, social engagements, and reduced caregiver stress and amount of medical visits. Most caregivers felt reassured by the multidisciplinary team's presence during visits, indicating a sense of comprehensive support. Despite study limitations, the findings suggest a multidisciplinary care model positively impacts the quality of life and functional status of neuropathic children and their caregivers. Further research integrating this approach into neurological care across disciplines like physiotherapy and occupational therapy is warranted to optimize care for this vulnerable population.